HELPING LACHLAN: Dane Mitchell of Peak Health with Sharnae King and son Lachlan Johnston, 5. PHOTO: ADAM HOURIGAN
HELPING LACHLAN: Dane Mitchell of Peak Health with Sharnae King and son Lachlan Johnston, 5. PHOTO: ADAM HOURIGAN

Bid to buy standing frame

LACHLAN Johnston is like any other five year old.

He loves swimming, music and is as cheeky as they come.

But unlike his preschool friends, Lachlan has septo-optic dysplasia; a condition that affects one in 10,000 newborns.

While still inside the womb, Lachlan suffered a stroke, which had an affect on his brain functionality, leaving him blind and unable to stand.

Yamba personal trainer Dane Mitchell of Peak Health was so moved when he heard Lachlan's story, he is hosting an eight week challenge to get this South Grafton youngster a standing frame worth $6500.

"I'm passionate about helping kids and families so when we went to the Variety Club this year and they presented Lachlan's case, we learnt they are a good family who work hard and just need a helping hand," Mr Mitchell said.

"We wanted to jump on board to help them."

Lachlan's mum Sharnae King said she was surprised and exceedingly grateful for Mr Mitchell and his crew's support.

"I'm so happy and excited; I didn't think anyone would offer this to us," Ms King said.

The standing frame, which will be purchased with the money raised from participants in the eight week challenge, will allow Lachlan to stand on his legs.

"When we first put him in (a frame) he really enjoyed it because he could put a tiny bit of pressure onto his legs," Ms King said.

"He wants to do it, but he hasn't got a frame at the moment so he can't, so having this frame at home will be great."

Progressively, Lachlan will put more weight on his legs, hopefully leading to being able to stand unassisted in the long term.

The eight week Your Best Body Challenge kicked off at the weekend, but there is still plenty of time to register if you'd like to be a part of a program that will not only change your life, but Lachlan's too.

What is septo-optic dysplasia?

Traditionally defined as an underdevelopment of the optic nerve, abnormal formation of structures along the midline of the brain and pituitary hypoplasia.

SOD is sporadic, so can occur in people with no family history.



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