Funding for IEM to be maintained
FEDERAL Member for Page Kevin Hogan has welcomed the announcement that the grant for people with Inborn Error of Metabolism (IEM) will be maintained.
Local resident Jayden Driussi is among those who suffer from IEM, a rare genetic disorder in which the body cannot properly turn food into energy.
Mr Hogan met with Health Minister Sussan Ley in early June and raised the issue of grants for those dealing with IEM.
It had been proposed to make changes to the IEM program which includes a subsidy for the purchase of low-protein products.
"I asked the minister to reconsider proposed changes as it would cause hardship for families affected by this condition. Yesterday she agreed," he said.
"This is great news and will be welcomed by families who are affected by this relatively rare condition which severely limits the range of foods their body can handle.
"Unlike other food-related illnesses and allergies, this condition cannot be managed using food alternatives you can buy in the supermarket."