Golf days support sufferers
FOR Grafton couple Kay and Reg McLennan the issue of muscular dystrophy is very close to home.
The couple's grandson Joseph, now 14 and living in Newcastle, has been fighting the debilitating condition since the age of four and they've made it their mission to ensure others fighting the same battle have the support and resources they need.
"The first clue that something wasn't right was when he kept stumbling over his feet - after some tests he was then diagnosed with muscular dystrophy," Mrs McLennan said.
"He doesn't have the type which can cause people to have to use a wheelchair but there are many sufferers out there who do."
The couple said while their grandson was fortunate to have great support, there were many people who could use a hand.
To that end, Mr and Mrs McLennan have organised two charity golf days at the Grafton District Golf Club to help support the Muscular Dystrophy Foundation of NSW.
"There's lots of support available out there for muscular dystrophy sufferers - for a price," Mrs McLennan said.
"The money raised can be put to very good use - it can be used to buy wheelchairs for those who can't afford them, carers for the families, things like that."
A medley golf day will be held at the Grafton District Golf Club, South Grafton on Sunday - there will also be a ladies day fundraiser golf day on Wednesday May 1.
- A neuro-muscular genetic disorder which causes the progressive deterioration or muscle strength and function.
- Can affect people of all ages but most forms occur in babies or children.
- About 20,000 Australians are affected by some form of muscular dystrophy.
- Most common childhood form is Duchenne muscular dystrophy.
- Little is known about the causes of muscular dystrophy but researchers are currently trialling various treatments to stop the progression of the disease.