Mum reveals toll on family as teen battles on

FAMILY FIGHT: Shanita Clark gets a comforting hug from mum Sharee as she continues to battle the painful effects of juvenile arthritis. Photo: Adam Hourigan
FAMILY FIGHT: Shanita Clark gets a comforting hug from mum Sharee as she continues to battle the painful effects of juvenile arthritis. Photo: Adam Hourigan

SHANITA Clark has proven herself a resilient individual, ignoring the painful effects of juvenile arthritis to claim the Australian Junior Masters tenpin bowling title.

"The arthritis doesn't get in the way, I don't let it," the 16-year-old said.

"I focus on the things I can do rather than the things I can't do."

Shanita faces a regime of injections and battles chronic pain but revealed time spent travelling for specialist treatment is one of the greatest challenges.

About 6000 children and young adults in NSW have juvenile arthritis but there are only two paediatric rheumatologists in the state and both are located in Sydney.

In a bid to improve access, Arthritis and Osteoporosis NSW has launched a campaign to increase awareness and funding for paediatric rheumatology services.

Until then, Shanita is required to travel to Brisbane every three months to see a specialist and she undergoes hydrotherapy in Grafton three times a week.

"I'm used to travelling so it's not too bad," she said.

"I don't know any difference so it just seems normal to me. I do miss out on a lot of school so that becomes an issue."

Shanita's mother Sharee said all the driving was hard on the family and the cost of travel, doctor's appointments and physiotherapy sessions added up.

"My husband and I take turns, it depends who can go, who has time off work," Mrs Clark said.

"It would be much easier if we didn't have to do the drive.

"I would like to see paediatric rheumatologists operating in the region in the future."

Mrs Clark said she would also like to see a paediatric therapist or psychologist in the area.

Topics:  ten pin bowling

Friday night chat with Jordan

CONNECTING YOUTH: Jordan Smith has a show called Youth Chat on Friday nights on 103.1FM Loving Life.

Loving Life presenter talks about why he has his show Youth Chat

Cyclone Debbie puts Clarence Valley back on flood watch

A BOM radar image of the eye of the storm passing over the Whitsundays.

Heavy falls could cause flooding on Thursday and Friday

Government to adopt greyhound industry changes

GREYHOUNDS: The start of race one at Thabeban Park which was won by number eight Smiles All round.

State MP Chris Gulaptis welcomes changes to keep greyhounds racing

Local Partners

Debating brings schools together

CVAS takes part in Northern NSW school debate as part of competition

CMC Rocks is just the ticket for Eric Paslay

HAPPY TO BE HERE: American country singer Eric Paslay will play CMC Rocks 2017.

Country music singer is touring overseas for the first time.

Pitching in to help Tyirra's brave fight

Tyirra McGrady, who is fighting a brain tumour in Lady Cilento Children's Hospital in Brisbane.

Tyirra McGrady diagnosed with a brain tumour when she was four

12 things to do in the Clarence Valley

John Ashby and his son Joel are taking part in the upcoming Lower Clarence Relay For Life.

Looking for something to do this weekend?

‘I feel sh*t’: Agonising Married At First Sight split

IT’S the Married At First Sight break-up we knew would eventually happen. And when it did it was miserable and excruciating.

Married at First Sight's controversial groom laying low

MAFS’ Anthony chooses to stay with wife Nadia at their vow renewal.

Anthony in hiding after backlash over his MAFS appearance

Seven, Nine’s crazy cyclone battle

Ruth Western ain't got time for Cyclone Debbie.

Reporters are battling fierce winds, and locals who won’t play ball.

MAFS bride shops around new love story

Nadia Stamp has put a price tag on her new man.

Nadia is shopping her $4000 new man ... and it’s not Anthony.

Kyle Sandilands declares war after dodgy editing

Shock jock Kyle Sandilands has issued a grim on-air warning

HEARTBREAK: M'boro farmer misses out on love on reality show

Susan Rawlings and Sean Hollands in a scene from Married At First Sight. Supplied by Channel 9.

Hearts were broken during Sunday's Married at First Sight episode.

MKR recap: The one where they actually get around to cooking

It’s amazing. They’re actually doing some cooking on this episode.

IT’S been nine weeks and the MKR teams shock us by actually cooking.

Luxury hotel expands $400m water park development

Developer to push on with second stage of massive new water park

Dalwood waterfall up for sale

Two people have died at Dalwood Falls, Ballina.

How would you like to own your very own waterfall?

Projects drive market growth in Clarence Valley

IN DEMAND: Yamba emerged as a top performer in houses and units in the latest real estate figures.

Influx of jobs to region bodes well for real estate

It's official: Byron Bay unaffordable

MILLIONAIRES ROW: The Housing Commission house in Keats St, Byron Bay which sold at auction on Saturday for $1.65 million.

Buying a home in Bay Bay is a dream too far for some

Coast home luring interstate buyers sold

PRIZED POSITION: Blue clip location, peaceful surroundings, spacious living with swimming pool, tennis court on 4562sq

The property was described as a 'Queenslander with Hamptons style'

Ready to SELL your property?

Post Your Ad Here!